PedNet (Pediatric Network on haemophilia management) is a collaborative platform for haemophilia children treating (pediatric) physicians since 1996; together they form the PedNet study group. In 2004 the study group started the PedNet Haemophilia Registry, an observational data collection of children with haemophilia A and B. The PedNet Haemophilia Research Foundation is the legal body for the study group and the registry.